Scarlett at home!

I've been really bad about updating the blog since Scarlett's been home! Sorry about that. But we're so happy the baby's back at home. She left the hospital on March 17 (St. Patrick's Day!) after at 57-day stay. Whew. It was a bit of a rough transition as we figured out all of her new equipment (she's still using her feeding tube for the time being, but hopefully not too much longer, and uses oxygen while she's sleeping), fought with the insurance company over paying for her medication, and got used to life with two working parents and a baby at home. But we're starting to get into a good routine, and really enjoying the times when all three of us are at home.

Here's a picture of my mom and I getting ready to take Scarlett home. I wish you could see the wagon loaded down with all our stuff, but it's behind the nurse who took the picture.

And here are some pictures of Scarlett since we've been at home. She seems to have figured out what the camera is, so she'll be all smiley and then stop as soon as I pull out the camera and refuse to smile anymore. Here's the closest I could get to a smiling picture:


I like this one because it makes her look like she has Angelina Jolie-esque lips:


She has taken a liking to eating her hand, especially when she can't find her pacifier.


She's also cross-eyed a lot these days (usually more than this) as she starts to focus in on a lot more stuff around her.

Here's a typical pose: kicking back with her little bear security blanket.

And here she is hiding from the camera. Hopefully she grows out of that soon!

New room, new baby

Great news: we finally got out of the ICU on Sunday, and Scarlett has continued to do great since we moved to our new room. She's just been so content and happy. There are still a few tests we need to do and equipment and medicines we need to wean her from, but hopefully we're on our way toward getting home.

Just look at this grin! We had some new visitors last night and today, Great Aunt Donna and Great Grandma Millie, and Scarlett was very excited.




She just loved Donna! I think it was her high voice.


Here's a picture with Dad from before we left ICU.


Pretty blue eyes.

She's been sitting up some in this chair from the occupational therapists. You can see her little hands going.

And earlier today, she had her first visit from a musical therapist! She was serenaded with lullabies.

Scarlett was quite enthralled, and loved all the attention.